Over the past 20 years there have been radical improvements in medical care, management, and life expectancy for people born with Spina Bifida.  Most people born with Spina Bifida in New Zealand live very fulfilled lives, just like other people in New Zealand.  Spina Bifida does not define who they are.  People with Spina Bifida have dreams and determination to reach their goals; they hold diverse and meaningful jobs; they get married and have families; and go on to make significant contributions to the communities they live in.

People with Spina Bifida here in New Zealand (and worldwide) not only succeed but are world-class athletes, politicians, actors, writers, musicians and doctors.  They help to educate society about what is possible, and to be a part of that journey is extremely rewarding.  People with Spina Bifida are proud of themselves, their accomplishments, and their success, all of which are not DESPITE Spina bifida, but BECAUSE of Spina Bifida.

Whether you are an adult or young person living with Spina Bifida, the parent of a child with Spina Bifida, or just found out that the baby you are expecting has Spina Bifida, we are here to help.  We provide information, support and guidance from the time of diagnosis, which can occur during pregnancy (or at birth), through to adulthood.

We offer an advocacy service for members experiencing difficulties with health, disability, early intervention or education services.   Contact Us.