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About Us

We are a non-profit organisation dedicated to supporting parents expecting a baby diagnosed with Spina Bifida and parents of children, young adults and adults living with Spina Bifida.  Read more

What is SB

Spina Bifida means – Spina (Spine) and Bifida (split or divided in).  Spina bifida is a neural tube defect.  It is the second most common birth defect worldwide, and affects about 1 in every 1000 pregnancies in New Zealand.  Read More

Living with SB

Historically, children in New Zealand born with Spina Bifida were often placed in institutional care.  However, much has changed over time and the way New Zealander's think about disability today is very different.  Read more

Support

Over the past 20 years there have been radical improvements in medical care, management, and life expectancy for people born with Spina Bifida.  Most people born with Spina Bifida live very fulfilled lives.  Read more